I want to create a list of Parents on this site with Children who have disorders, or parents with Disorders themselves. So other parents in need can find support!
ANYTHING that is HIGHLIGHTED or UNDERLINED is a link, click it for more info.
Here is the link to the Mental Health Support thread;
Here is a link to a BG member who has spent a good portion of her life working with and being around Special Needs children, Sherri.
Here is the link for the Down Syndrome Parent Support Thread;
Here is a link for the Genetic Disorder Support Thread; [GDS]
I want to add you to this list; [If you have a disorder or your child does!]
Down Syndrome Mothers;
Sam, who's son has DS.
Ashley, who's son has DS.
Jess, who's son has DS.
Amanda, who's daughter has DS.
Lindsay, who's son has DS.
Andrea, who's son has DS.
Suzy, who's daughter has DS.
Merissa who's daughter has DS.
Cystic Fibrosis Mothers;
Tawny, who's son has CF.
Lisa, who's son has CF.
Sara, who's daughter has CF.
Syndactyly, Brachydactyly, and Polydactyly;
Brooke, who's son has Syndactyly. Tiffany, who's son has Syndactyly .
Amanda, who's son has polydactyly and schizencephaly. Other Genetic Disorder Mothers;
Jenell, who's daughter has Turner Syndrome.
Sara, who's daughter has VUR Reflux.
Jelena, who's son had cardiac surgery at 11 days old.
Desiree, who's daughter has Galactosemia.
Lindsy, who's son has yet to get the proper diagnosis, yet might be given the diagnosis cerebral palsy.
Aly, who's daughter has McKusick Kaufman Syndrome.
Chasity, who's son has Autism, daughter has Chronic Asthma + Type 1 Diabetes, and who's other son has suffered from Seizures.
Jenna, who suffers from Neurofibromatosis.
Jill, who's daughter has Kidney Reflux, and Strabismus.
Ashley, who's niece suffers from; Acute Lymphoblastic Leukemia.
Katy, who's daughter has AV Canal Defect, as well as a son who suffers from ADHD.
Jamie, who's daughter has only One Kidney.
Heather, who's nephew's suffer from MCAD.
Mikayla who's daughter has Asthma.
Laurie who's son has Williams Syndrome.
Latisha who's son has Cerebral Dysgenesis.
Lacey who's daughter suffered from Bilateral cleft lip/palate.
Tasha who's son has Autism, ADHD, Asthma, and ASD.
Ashley who's daughter suffers from Seizures.
Keisha who's daughter has Congenital Adrenal Hyperplasia.
Marcie who's son suffered from Pilocytic Astrocytoma.
Tiffany, who's daughters had/have club feet.
Christina who's son has Sensory Processing Disorder.
Felecia who's son has Type 1 Diabetes.
Jennifer who's son has Congenital Hypothyroidism.
Laree who's daughter has DiGeorge Syndrome.
Kelly who's son has MCAD Deficiency.
Jasmine who's daughter has Cerebral Palsy.
Cassi who's son has Asthma.
Jacque who's son has Asthma and Sleep Apnea.
Erica who's son has Gastroesophageal Reflux Disease.
Crissy who's son has Asthma and severe milk/soy/dairy allergies.
Stacy who's son has Galactosemia.
Erin who's daughter has bladder extrophy.
Brittany who's son has hypogammaglobulinemia G2 and G4, crohn's disease, duodenitis, and chronic respiratory disease.
Jess whos son has MCAD.
Sonja who's daughter has unilateral cleft lip.
Karin who's daughter has leukemia.
Kelsey who's daughter will be born with only one kidney.
Mercedes who's daughter has Kidney Reflux in her left kidney, Congenital Hypothyroidism, & a portion of her chromosome for Cri Du Chat (Cats Cry) Syndrome is missing.
Jamie who's son has Autism.
Bianca who's son has Schizencephaly.
Rebecca who's son has cortical malformation of the brain as well as Asthma and hypotonia.
Candi who's daughter has Situs Inversus.
Kris who's daughter has Epilepsy.
Bethany who's daughter has Hypotonia.
Parents With Disorders;
i suffer from bi-polar disorder and was just diagnosed last week. does that count to the list?
Averie has, Kidney Reflux. Its treatable though.
And she was born with a Strabismus.
Me, I have "Adult Onset Still's disease" There is not a cure for it.
Don't know if this counts but I have rheumatoid arthrits. My name is Jessica.
just wanted to add, that my best friend has a daughter with down syndrome and i think it is great of you to have a post like this!!!!!
You can add me to the list. I don't have a child with any disorders. But my sister who is 18 has multiple things wrong with her. She is michalcephalic (head is smaller in porportion to her body) seizures, tumor on right side of brain. I can help out some moms dealing with the same thing. Also I worked at a camp (Louisiana Lions Camp) for the mentally challenged, physically challenged and diabetic youth of Louisiana. I worked there for 4 summers. I know my stuff and would love to help out mommmies.
If you all can leave your name, i'll link everything up in a little bit!
Okay. ANme is Sherrie.