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Born unable to swallow. tedua_anne 3 kids; United States 1035 posts
Jan 1st '17

Hey everyone I know it has been a while since I last posted it has been very busy.


Well it's January which means it's EA/TEF awareness month.

My daughter Elena was born with esophageal atresia tracheoesophageal fistula, what is that? That is when the esophagus (tube that takes food from mouth to stomach) is disconnected from the middle. The top of the disconnected esophagus ends in a blind pouch (like a sock). Thr bottom part of the disconnected esophagus misconnects to the wind pipe . 1 out of 4,500 live births worldwide end up having this and the cause of this still remains a mystery !

My daughter struggles on a daily basis because of this! She has severe heart problems, she will possibly never eat by mouth, she has spine problems because of this, a low immune system because of this (within three weeks we have been hospitalized twice because of pneumonia), she is extremely delayed in everything! She is 4 months and can finally hold her head up!

Here is when my periwinkle fighter started her fight 61aeb52fff8a9d2fec39fec336ebb13b.png



Here is my periwinkle fighter now
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bia. 4 kids; ., ., Portugal 102631 posts
Jan 1st '17

I was wondering About you the other day. She is so beautiful! 

tedua_anne 3 kids; United States 1035 posts
Jan 1st '17

Quoting bia.:
I was wondering About you the other day. She is so beautiful! 


Thank you, I have been so busy recently that I'm barley able to eat lol. I miss all of you ladies though.

❤ Just Sheena ❤ 4 kids; 1 angel baby; my house, AR, United States 5913 posts
Jan 1st '17

She's beautiful!

tedua_anne 3 kids; United States 1035 posts
Jan 1st '17

Quoting ❤ Just Sheena ❤:
She's beautiful!


Thank you!

Oh Why Not 2 kids; Hallandale beach, Fl, United States 8672 posts
Jan 1st '17

What an angel! Shes precious.

tinana+3 3 kids; 1 angel baby; Orlando, FL, Virgin Islands 48300 posts
Jan 1st '17

Beautiful little baby! 

Thinkaboutit 4 kids; United States 2511 posts
Jan 1st '17

Hugs momma! I hope she grows out of some of her issues with time! 

I actually personally know someone who had a baby with this a few years ago and they had no idea until he was born. 

Ohana❤ 3 kids; 1 angel baby; Nvr, NL, United States 1904 posts
Jan 2nd '17

She's so beautiful! 

Have Heart 2 kids; 2 angel babies; Western, NY, United States 9013 posts
Jan 2nd '17

poor little sweetie! I remember when this all unfolded for you. she's beautiful!

it's so incredibly tough to have your child born with something wrong with them, I speak from experience. Both my boys have struggled.

tedua_anne 3 kids; United States 1035 posts
Jan 6th '17

Thank you ladies! Hopefully some of this stuff will be temporary.