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Is he just being a pain?? Tashu84 2 kids; NAPIER, NZ, New Zealand 1908 posts
Apr 29th '16

So I'm new to this whole world of ADHD.  DS2 is 6 and on 20mg of Ritalin LA with no afternoon dose because he 'doesn't need it' apparently.  We tried the whole Melatonin thing at night to help him sleep at night but because he's just too full of and wired, it has absolutistly no effect.  Once that medication has worn off too, he's got no sense of danger and it scares me!  Family GP has seen him with and without medication and strongly agrees that an afternoon dose should have been issued and is currently looking into it.  With a baby on the way, he agrees that him racing around like a high powdered race car is dangerous and to avoid any accidents, it MUST be address accordingly so we are waiting to hear back about what is happening.  He wouldn't deliberately hurt a baby but us know he can (as well as him knowing as well), scares not only us, but him too. :(  That can't be a cool feeling for a 6 year old who is so excited to be a big brother. :'(  But we have had a couple of occasions where medication has been forgotten in the morning and so he's had it in the afternoon just so he can slow down, focus and think.  He gets really upset when he's not taken it because of the impulses he struggles to control.  We have noticed that when he's had it in the afternoon, he goes to bed calm and sleeps easily because his brain isn't racing at a million miles per second.  Got told by the Psychiatric nurse I didn't know what I was talking about because Ritalin is 'a stimulant and it should hype him up'.  If that were the case, WHY do they give it to ADHD kids?!?!  I mean, coffee calms him down and he might get a sip here and there of mine on the rare occasion but I am sure as Hell NOT making it part of his regular bedtime routine!  Ideally, we would like to aim for bed at 7:30pm during Sunday to Thursday.  Anyhow, doctor has seen and heard many a case and for him, thinks it's a good idea because he's lucky to sleep 4-5 hours a night.

My question is, this restlessness at night where sleep is an issue, is it part and parcel of ADHD or is he playing on it and using the ADHD as an excuse - I mean, honestly.  We've caught on pretty quickly to what he can't control and what he blames on ADHD but this I'm not completely sure about.  We have tried quiet time, a movie, story in bed, sending him to bed before his brother (currently waiting on a 3 bedroom we have been after for some time to become available), hot milk/chocolate, taking away privileges if he doesn't listen, rocking and cuddling him, running him to exhaustion after school with the park etc and NOTHING works.  Not only is him being super hyped draining on me, his brother and his father but it must be really hard on him too. :(  He needs his sleep but until we know if an afternoon dose is approved or not, is there anything we can do we haven't tried that has worked for you ladies?  He needs that sleep.  He's just so tired and anti come 3pm (he's awake around 5am most mornings) I want to get those much recommended 8-10 hours of sleep in for him.

bia. 4 kids; ., ., Portugal 102628 posts
Apr 29th '16

I don't know, but I just can't believe they are OK with a growing boy only sleeping 4-5 hours per night, that isn't healthy for anyone, especially a kid. I hope you get some answers soon, and can up his intake. My ex best friends brother had ADHD, he was terrible growing up Embarassed I couldn't imagine. 

Tashu84 2 kids; NAPIER, NZ, New Zealand 1908 posts
Apr 29th '16

Quoting bia.:
I don't know, but I just can't believe they are OK with a growing boy only sleeping 4-5 hours per night, that isn't healthy for anyone, especially a kid. I hope you get some answers soon, and can up his intake. My ex best friends brother had ADHD, he was terrible growing up Embarassed I couldn't imagine. 


I'm not happy with him sleeping so little - I mean, I want more sleep too. :p  And they didn't give a shit.  They said he will sleep longer, better and be calmer in time.  Yeah, sure he will.  4 months down the track and nothing has changed in his sleeping patterns at all.

But to be turned away by CAFS (remembering I stated the HBDHB have their fingers up their ass most of the time) just pissed me off.  I KNOW my child.  I've been dealing with this for 6 years and only in the last year, was taken seriously - or so I thought. *sigh*  The 20mg is fine for the most part but around 1-2pm he needs that extra to keep him calm and mellow.  Poor kid gets into all sorts of trouble and me never having lived or dealt with it, has caused serious fractures in our relationship that need repairing. :(  I love my little guy more than life itself but I'm just so exhausted and confused as to how I SHOULD help him. :(  I don't understand him and that's the hardest part about trying to parent blind with this.  Monday I will ring the doctor and see how he's gotten on.  Otherwise I might just ask if a double dose of the 20mg should happen which he would have to authorize with the Controlled Drug Center.  That would mean 40mg a day 60 caps a month. :(  Poor kid.  I wish he was never dealt this hand. :'(

LittlebuttsMamax3! 3 kids; 1 angel baby; Asheville, North Carolina 17335 posts
Apr 29th '16

My 6 year old daughter has ADHD too. She has a hard time settling down and falling asleep, not as bad as your son it sounds like though. Once her medicine wears off (about 4pm) she's rough. I give her lots of outside play time in the evenings. Ive noticed it helps a little.

☆Mrs. Mathers☆ 3 kids; Greenway, OH, United States 26554 posts
Apr 29th '16

My nephew has adhd and has always had trouble sleeping, unless he was medicated. Like he could live off 4 hours of sleep a night every night.

I have adhd and unmedicated I can have trouble sleeping from my brain wandering from thought to thought.

It very well could be the adhd.

Viv ♥ 3 kids; ., TX, United States 15559 posts
Apr 29th '16

I don't have answers for your child specifically. But I will say my personal experiences. I've taken some form of ADHD medication for 22 years. I was one of the first 700,000 people in the US to be diagnosed and medicated in the 90s. YES the meds are a stimulant and they are stimulating him whether you notice it or not. Its speeding up his thought process so he can focus on one thing at a time. And that makes you think he's slowed down because he's usually doing a million things at once. Even hours after the meds wear off it can effect his sleep. But ADHD patients will suffer with insomnia their entire lives. It is part of the diagnosis. Now thats not saying he isn't blaming things on his ADHD, I never did that because I was embarrassed by having it. I was on sleeping medication as a kid. I woke up through most of it. I slept walked and my parents had to set up an alarm that told them when I went downstairs, to make sure I didn't walk outside. I would wake up on ambien and not remember anything. I was given tranquilizers, anxiety meds and antihistamines all at once at one point. Eventually as a teen I could drink a sip of nighttime cold meds and sleep okay. Its all a learning curve. I can't even tell you the amounts of meds I have tried throughout my life. A lot of the adhd meds don't even exist anymore. I say first task is to make sure the day meds are working correctly and then figure out the night. 

Tashu84 2 kids; NAPIER, NZ, New Zealand 1908 posts
Apr 30th '16

Any night I can have him asleep before midnight I am doing very well.  It's not very often though. :(  We are thinking about enrolling him in Brazilian Ju Jitsu 2 nights a week just to see if that can help release some of that built up energy.

The fact that the Melatonin doesn't work (and it costs me $120 a month because it's a: not funded here, and b: it's on the Controlled Drug list so I need to obtain it though the doctor) sort of told me what I thought I knew.  

That's actually really interesting.  I always thought it slowed him down - not stimulate him.  I just can't wrap my head around how that works probably because I haven't been diagnosed myself.  But they want to test me and put me on meds to 'help' me understand Beanie.  I'm sorry, but at 30 years old, if I am diagnosed and medicated, that's not helping me understand him if I don't understand myself.  I'd rather not know if that makes any sense.  It's frustrating because is some strange ways, he 'proud' of the ADHD because he can use it to his advantage.  His teacher has also caught on too so he's not really doing himself any favours! :p

I know the 20mg of LA is right.  But it needs an afternoon dose of a quick release to not only keep him calmed and focused, but to keep baby safe and allow him to sleep.  This lack of sleep can't be good for a growing child. :(