Reply
What can I expect?? Tashu84 2 kids; NAPIER, NZ, New Zealand 1908 posts
Apr 16th '16

So I am about to file a formal complaint to Children's Mental Health because my concerns about my eldest haven't been taken seriously even though there had been an official observation done in regards to behaviours first.  We had 2 observational assessments done.  Only 2 for them to tell us 'it's all in our heads'.  After going though the ADHD ride with our youngest, we know that a formal diagnosis of ADHD doesn't happen after 2 observations.  One at the clinic, on in the classroom and apparently that alone rules out Inattentive Type ADHD and Sensory issues.  So because  I wasn't happy, I went back to my doctor who has dealt with my son since birth for a second opinion.  He looked at the original clinical observation and is absolutely disgusted that he has been dismissed so quickly without any real care taken to our family's needs.  He has since agreed we need to have this sorted for our son because we are not the only one's who have expressed concerns.  His uncle, a doctor also agrees that this needs to be looked into and assessed accordingly.  They are also looking at Asperger's which makes no sense because he has a huge amount of compassion for other people and animals - something Asperger's sufferers generally don't have because they don't understand emotion.

So we are waiting to hear from a Pediatrician in regards to official testing for Inattentive Type ADHD, NT and Sensory.  Any offical diagnosis will also lead to another formal complaint for negligence in care but that has to wait until the Health Board make an assessment.  I know that it's a longer process than 2 irregular visits - which is all we were offered first time with Children's Mental Health.  Final diagnosis for that doesn't worry me as I am aware how the system works.  It took 2.5 years to get an official diagnosis for our youngest because they started at 2.5 years and can't make that final call until school age.  But what can I expect in the way of testing, observations etc with Sensory and NT and generally how does this process work??  I have no idea what to expect.

chubbie2hubbie 3 kids; 1 angel baby; Cowpoop, WI, United States 132 posts
Apr 16th '16

My daughter has been diagnosed with aspergers and she has a ton of compassion for people and animals. That's just one marker in the diagnosis. 

Tashu84 2 kids; NAPIER, NZ, New Zealand 1908 posts
Apr 16th '16

Quoting chubbie2hubbie:
My daughter has been diagnosed with aspergers and she has a ton of compassion for people and animals. That's just one marker in the diagnosis. 


So them ruling out Asperger's based on empathy is not always an accurate indication?  I've always gone with what I have been told my medical staff and what I had read.  Might be worth asking about when we get to the Pediatrician then?  Mind you, his great Granny started questioning Autism when he was around 6 months old because 2 out of 3 of her son's were diagnosed as little ones too.  Apparently there isn't enough for him to fit on the Autistic spectrum but NT is a diagnosis of Autism in some sense for those who display traits but not enough for a complete diagnosis if that makes sense.  So in some ways, they are but they aren't.  We have known for some time something may have been going on but it's become more apparent in the last couple of years.  We want to help him understand he's different but it's hard when we don't know exactly how to help him. :(