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Hypotonia 9 month old and disability Michonne 2 kids; United States 1820 posts
Mar 21st '16

We currently don't have an official diagnosis for why she has Hypotonia, but her MRI and EEG came back normal. We are still waiting for her Micro Array (genetic testing) to come back. So she has mild Hypotonia. She doesn't crawl, pull herself up into sitting position, pull herself up on things, walk or none of that. My dad is an RN and he thinks of she does walk she won't be doing sports to much because it would be hard for her. My family thinks I need to get her on disability and I'm not sure if I could even get her on disability with no official diagnosis yet other than just the Hypotonia. What are your ladies thoughts and gentlemen if there are any. Would she qualify yet? Should I wait for a diagnosis? This is my first time with all of this. My son is gifted so I never learned anything about what to do or what would meet qualifications. TIA.

Thinkaboutit 4 kids; United States 2511 posts
Mar 21st '16

Quoting username:
We currently don't have an official diagnosis for why she has Hypotonia, but her MRI and EEG came back normal. We are still waiting for her Micro Array (genetic testing) to come back. So she has mild Hypotonia. She doesn't crawl, pull herself up into sitting position, pull herself up on things, walk or none of that. My dad is an RN and he thinks of she does walk she won't be doing sports to much because it would be hard for her. My family thinks I need to get her on disability and I'm not sure if I could even get her on disability with no official diagnosis yet other than just the Hypotonia. What are your ladies thoughts and gentlemen if there are any. Would she qualify yet? Should I wait for a diagnosis? This is my first time with all of this. My son is gifted so I never learned anything about what to do or what would meet qualifications. TIA.


I'd first start with your local regional center to get her therapy. Call and get on the wait list....it can take up to two months to get an evaluation, if she qualifies, the services will be free and typically they come to your house, it is easy.

Just wanted to tell you to that my 3 yr old had mild hypotonia, did not sit until 9 months, crawled around 11 months and walked at 17 months.  She went to PT for a few months. She still can't pedal a trike...but doesn't really try to, so who knows. She seems normal now...maybe just a little less athletic than peers....but does gymnastics and you'd never pick her out of the class as being different. Good luck!

Michonne 2 kids; United States 1820 posts
Mar 21st '16

Quoting Thinkaboutit:

I'd first start with your local regional center to get her therapy. Call and get on the wait list....it can take up to two months to get an evaluation, if she qualifies, the services will be free and typically they come to your house, it is easy.

Just wanted to tell you to that my 3 yr old had mild hypotonia, did not sit until 9 months, crawled around 11 months and walked at 17 months.  She went to PT for a few months. She still can't pedal a trike...but doesn't really try to, so who knows. She seems normal now...maybe just a little less athletic than peers....but does gymnastics and you'd never pick her out of the class as being different. Good luck!


She is 9 months old and she also only says mama she doesn't babble dadadada babababa or none of that just yells at people or things she's trying to get attention from. She is already receiving PT and OT and possibly speech if she doesn't start babbling soon. I just don't know if I should try to get her disability so I can get her better insurance.

hilee18 1 child; United States 691 posts
Mar 21st '16

Unless the hypotonia is severe I don't know that your LO would qualify for disability most people are denied the first time, I'd hire an attorney if you are serious, 

My son is 20 months and says mama, dada, nana and signs more he's considered to be at a 9 month level so I wouldn't worry about speech. 

Michonne 2 kids; United States 1820 posts
Mar 21st '16

Quoting hilee18:
Unless the hypotonia is severe I don't know that your LO would qualify for disability most people are denied the first time, I'd hire an attorney if you are serious, 

My son is 20 months and says mama, dada, nana and signs more he's considered to be at a 9 month level so I wouldn't worry about speech. 


Thanks. I've always been about early intervention. The speech thing is if she doesn't say more by 1 year she will be referred to speech.