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Who Can Help Jive TTC since Aug 2013; 33 kids; South Carolina 25217 posts
May 25th '10

U.S. Department of Education and Office of Special Education & Rehabilitation Services, Clearinghouse on Disability Information
(202)245-7307 (for information on disability programs and legislation)



Social Security Administration:
1-800-772-1213
http://www.ssa.gov
For information on SSI benefits for children with disabilities.



National Dissemination Center for Children with Disabilities:
1-800-695-0285
http://www.nichcy.org
For information, referrals and respite care.



Administration for Children and Families, Department of Health and Human Services:
(202)401-9215
http://www.acf.hhs.gov
For information on respite care in your area.

March of Dimes

(914)997-4488
http://www.marchofdimes.com
For educational materials and referrals.



Resources for Children with Special Needs, Inc.
(212)667-4650
http://www.resourcenycdatabase.org
For information on support in the NYC area.



Federation for Children with Special Needs
(617)236-7210
http://www.fcsh.org
For literature and referrals.



Ronald McDonald House Charities
One Kroc Drive
Oak Brook, IL 60523
Phone: 630-623-7048
Fax: 630-623-7488
E-mail: info@rmhc.org
http://www.rmhc.org



Father Network
(425)653-4286
http://www.fathersnetwork.org
For information and support for fathers of children with special needs.



Nation Health Information Center
1-800-336-4797
http://www.health.gov/nhic
For phone numbers and websites of more than 1,400 health-related organizations.



Disability Workshop Catalog
(360)694-2462
http://www.peakspress.com



Individual websites for disorders:

National AIDS Hotline
1-800-232-4636
http://www.aidshotline.org

American Academy of Allergy
, Asthma and Immunology
(412)272-6071
http://www.aaaai.org



Asthma & Allergy Foundation of America
1-800-7ASTHMA
http://www.aafa.org



National Allergy and Asthma Network Mothers of Asthmatics
1-800-878-4403
http://www.aanma.org



Jewish Medical and Research Center
1-800-222-LUNG
http://www.njc.org



Autism Society of America
1-800-3AUTISM
http://www.autism-society.org



National Cancer Institute
1-800-4CANCER
http://www.cancer.gov



Celiac Sprue Association
1-877-CSA-4CSA
http://www.csaceliacs.org



United Cerebral Palsy
1-800-872-5827
http://www.ucp.org



Cystic Fibrosis Foundation
1-800-FIGHT-CF
http://www.cff.org

American Association on Intellectual and Developmental Disabilities

(202)387-1968
http://aaidd.org



Voice of the Retarded
1-877-399-4VOR
http://www.vor.org



Juvenile Diabetes Research Foundation
1-800-533-CURE
http://www.jdrf.org



National Down Syndrome Society
1-800-221-4602
http://www.ndss.org



Epilepsy Foundation of America
1-800-332-1000
http://www.epilepsyfoundation.org



The National Fragile X Foundation
1-800-688-8765
http://www.fragilex.org



Alliance of Genetic Support Groups
(202)966-5557
http://www.geneticalliance.org



Deafness Research Foundation
(212)328-9480
http://www.drf.org



Arthritis Foundation
1-800-283-7800
http://www.arthritis.org



American Speech-Language-Hearing Association
1-800-638-8255 (voice or TDD)
http://www.asha.org



Muscular Dystrophy Association
1-800-572-1717
http://www.mda.org



Unified to Support Metabolic Disorders in America
(281)250-9078
http://www.usmd-pku.org



Sickle Cell Disease Association of America
(410)528-1555
http://www.sicklecelldisease.org



Spina Bifida Association of America
1-800-621-3114
http://www.sbaa.org



Thalessemia Action Group and Cooley's Anemia Foundation
1-800-522-7222
http://www.thalessemia.org



American Council of the Blind
1-800-424-8666
http://www.acb.org




If anyone has any helpful links, numbers or information available, I will gladly add it here.

blahblahblahx4 4 kids; Arizona 10455 posts
May 25th '10

I think this is a good idea!!

Jive TTC since Aug 2013; 33 kids; South Carolina 25217 posts
May 25th '10

If anyone has websites or numbers I can add to the OP, I gladly will.

user banned Due September 9 (boy); 1 child; Zimbabwe 42927 posts
May 27th '10

You did a great job.... I can start compiling the numbers for each states early intervention...

Jive TTC since Aug 2013; 33 kids; South Carolina 25217 posts
May 27th '10
Quoting Jamils_ mommy:
Mer is a Douchebag TTC since Dec 1999; 1 child; Bald Knob, Arkansas 72479 posts
Jun 2nd '10

How about Ronald McDonald House Charities?
They are a great resource if your child requires a hospital stay.

Jive TTC since Aug 2013; 33 kids; South Carolina 25217 posts
Jun 2nd '10
Quoting Mer is a Mean Girl:
*eom* 35 kids; Washington 8510 posts
Jun 25th '10

Thanks for this

user banned Kentucky 148 posts
Aug 9th '10
Quoting Jamils_ mommy:“ You did a great job.... I can start compiling the numbers for each states early intervention...”



yup, really agreat job

that girl[GDS] 2 kids; Alaska 423 posts
Nov 1st '10

what about mums? they have a great monthly news letter to help u connect with other families.

that girl[GDS] 2 kids; Alaska 423 posts
Nov 1st '10
Quoting Konner*Gracies mum[GDS]:“ what about mums? they have a great monthly news letter to help u connect with other families.”



sorry.... netnet.net/mums/ ...i forgot the link. you have to fill out a long form but for parents like me, that have children with very rare genetic disorders it great!

Pathways Awareness Illinois 2 posts
Jan 18th '11

Another one to add to the list is Pathways. Pathways Awareness is uniquely dedicated to increasing knowledge about the gift of early detection and the benefit of early therapy for infants and children with early delays. We honor and support their parents by providing knowledge, information and a sense of community as they guide their children on life

mama3trish 3 kids; Ontario 9524 posts
Jun 15th '11
Quoting Pathways Awareness:" Another one to add to the list is Pathways. Pathways Awareness is uniquely dedicated to increasing knowledge ... [snip!] ... of community as they guide their children on life
Zipo Bibrok [LIVR] 3 kids; Baton Rouge, Louisiana 10565 posts
Aug 12th '11

I'm planning to attend a CHADD meeting this month.
www.chadd.org



Children and adults with ADD.

punkintaysmomma 2 kids; Cincinnati, Ohio 1010 posts
Aug 30th '12

This is a Laryngomalcia Support thread its a breathing disorder sort of assuming this is still updated



http://www.copingwithlm.org/