U.S. Department of Education and Office of Special Education & Rehabilitation Services, Clearinghouse on Disability Information
(202)245-7307 (for information on disability programs and legislation)
Social Security Administration:
For information on SSI benefits for children with disabilities.
National Dissemination Center for Children with Disabilities:
For information, referrals and respite care.
Administration for Children and Families, Department of Health and Human Services:
For information on respite care in your area.
March of Dimes
For educational materials and referrals.
Resources for Children with Special Needs, Inc.
For information on support in the NYC area.
Federation for Children with Special Needs
For literature and referrals.
For information and support for fathers of children with special needs.
Nation Health Information Center
For phone numbers and websites of more than 1,400 health-related organizations.
Disability Workshop Catalog
Asthma & Allergy Foundation of America
National Allergy and Asthma Network Mothers of Asthmatics
Jewish Medical and Research Center
Autism Society of America
National Cancer Institute
Celiac Sprue Association
United Cerebral Palsy
Voice of the Retarded
Juvenile Diabetes Research Foundation
National Down Syndrome Society
Epilepsy Foundation of America
The National Fragile X Foundation
Alliance of Genetic Support Groups
Deafness Research Foundation
American Speech-Language-Hearing Association
1-800-638-8255 (voice or TDD)
Muscular Dystrophy Association
Unified to Support Metabolic Disorders in America
Sickle Cell Disease Association of America
Spina Bifida Association of America
Thalessemia Action Group and Cooley's Anemia Foundation
American Council of the Blind
If anyone has any helpful links, numbers or information available, I will gladly add it here.
I think this is a good idea!!
If anyone has websites or numbers I can add to the OP, I gladly will.
You did a great job.... I can start compiling the numbers for each states early intervention...
Quoting Jamils_ mommy:
How about Ronald McDonald House Charities?
They are a great resource if your child requires a hospital stay.
Quoting Mer is a Mean Girl:
Quoting Jamils_ mommy:“ You did a great job.... I can start compiling the numbers for each states early intervention...”
yup, really agreat job
what about mums? they have a great monthly news letter to help u connect with other families.
Quoting Konner*Gracies mum[GDS]:“ what about mums? they have a great monthly news letter to help u connect with other families.”
sorry.... netnet.net/mums/ ...i forgot the link. you have to fill out a long form but for parents like me, that have children with very rare genetic disorders it great!
Another one to add to the list is Pathways. Pathways Awareness is uniquely dedicated to increasing knowledge about the gift of early detection and the benefit of early therapy for infants and children with early delays. We honor and support their parents by providing knowledge, information and a sense of community as they guide their children on life
Quoting Pathways Awareness:" Another one to add to the list is Pathways. Pathways Awareness is uniquely dedicated to increasing knowledge ... [snip!] ... of community as they guide their children on life
I'm planning to attend a CHADD meeting this month.
Children and adults with ADD.