Being a mom with a chronic condition-my story

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Do you live with a chronic condition every day? I do. Some days, I just want to hang this kind of sign up on my door:

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When you live with a chronic condition that confines you to your bed for the most part, it's really hard. It's not like you can just take a "sick day" from your kids. Especially when you are the sole care giver. I have suffered for a LONG time with my stomach and up until recently, we didn't know what was causing it. It was suspected at first to be crohns, then celiac disease but ended up being gastroparesis. For those who may not be familiar with this, it's basically a condition where you stomach doesn't empty right and causes violent and frequent vomiting, severe constant nausea, abdominal pain and consistent, involuntary burping from acid build up. It's a pain to deal with and has caused me to not be able to keep jobs because I am so sick so often. On top of that I have also recently been diagnosed with chronic vertigo and they think it may be associated with gastroparesis. Even though I am currently now on medication for my stomach, it doesn't always help and it's not a condition that is curable. It's possible to go into "remission stages" at times with the medication but it's something that I will most likely live with the rest of my life. With just these two conditions, it has pretty much confined me to my bed 24/7 which is just NOT possible when you have four little kids that need your constant care. Some days I feel well enough to do stuff around my house as well as take care of my kids. Other days(especially lately) I have been SO awfully sick that it takes every bit of my strength just to make it through the day with my kids. Anyone else? How do you manage? I try my best to push through everything because I know my kids need me. But especially with the chronic vertigo, I can't even function and it scares me to take care of my 4 month old because I have almost dropped him, cracked my head against the door and almost fell down the stairs a couple times. I don't have the option to have someone come help me either. My husband actually had to stay home from work yesterday because my vertigo was so out of control that I couldn't even stand up unassisted, let alone take care of my kids. 

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2 Comments
oilfieldmama May 23rd '14

I know how you feel. I was diagnosed with an incurable skin disease when I was 15, just before I had my first son at 17. I since have 2 more at 26 who are 2 1/2 and 2months old. I deal with constant debilitating pain from just walking or moving my arm wrong. It causes cysts to grow inside my sweat glands and fill with blood. I am on no medication currently since all they do is make me sicker

Trey&Genesis'momma May 24th '14

Oh wow. I'm sorry to hear that.