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Thyroiditis/Hyperthyroidism Team❤Pink 3 kids; 4 angel babies; Maryland 4672 posts
May 19th

Okay so back story...i found a lump on my neck, diagnosed a thyroid nodule they were talking cancer, had an ultrasound and bloodwork done. Came back as thyroiditis and I'm in hyper stage right now. My ENT referred me to an endo and the earliest I csn get an appt. is July 14. I'm in a lot of pain-have been for weeks along with a list of other symptoms (tremors, anxiety, heart palpitations, extreme fatigue, dilbilating muscule pain). Is it okay not to be treated for that long? I did call my ENT and left a message for her but in the meantime, I'd love to her silimiar stories or just some opinions. My nodule also needs to be biopsy because they were a couple markers they're concerned about. I've also tried calling a few other Endo's and it seens the norm is a couple months wait for an appointment. I just thought that because I have already received a diagnosis that seems to require immediate attention that someone would fit me in. I'm worried about my nodule being cancerous and or complications arising from the untreated hyperthyroidism.

Cat.Woman. 2 kids; Gotham City, PA, United States 8833 posts
May 19th

My mom had a lump on her thyroid and had surgery when I was very young. She has only half of her thyroid and is not on any medication, which usually surprises doctors. 

Eta: I'm not sure if that actually helped any. I'm sorry. I guess I just wanted to say she went through the same thing and is ok and has been for almost 30 years.

Williams and Owen's Mommy 2 kids; Augusta, Georgia 202 posts
May 19th

You should be fine....I've never had thyroiditis or needed a biopsy before but I've been dealing with hypothyroidism for 22 years...your levels are probably elevated enough to throw you into hyperthyroidism but not enough to cause concern....they maybe thinking if they find the cause of the inflammation the high level will resolve themselves with out putting medication in your system....long story short I've gone of my meds for months at a time and I'm just fine....not a good idea but I'm ok...lol...

Team❤Pink 3 kids; 4 angel babies; Maryland 4672 posts
May 19th

Quoting Williams and Owen's Mommy:
You should be fine....I've never had thyroiditis or needed a biopsy before but I've been dealing with hypothyroidism for 22 years...your levels are probably elevated enough to throw you into hyperthyroidism but not enough to cause concern....they maybe thinking if they find the cause of the inflammation the high level will resolve themselves with out putting medication in your system....long story short I've gone of my meds for months at a time and I'm just fine....not a good idea but I'm ok...lol...


Yeah, I was hoping to have the answer of what is causing my thyroiditis so I can be treated because I'm in the worst pain and have been for weeks now.  I have 3 kids that need me and right now I'm so run down I can't even function. Also with hyper you can have complications with the heart beating too fast. My resting heartrate right now is 106. My norm has always ran low, in the high 40's. That concerns me!

Team❤Pink 3 kids; 4 angel babies; Maryland 4672 posts
May 19th

Quoting Cat.Woman.:
My mom had a lump on her thyroid and had surgery when I was very young. She has only half of her thyroid and is not on any medication, which usually surprises doctors. 

Eta: I'm not sure if that actually helped any. I'm sorry. I guess I just wanted to say she went through the same thing and is ok and has been for almost 30 years.


Thanks. It does help to hear positive stories. 

♥Jessie♥ TTC since Sep 2017; 4 kids; 2 angel babies; Idaho 13771 posts
May 19th

My ex-husband has hyperthroidism/Graves' disease. He does not treat it because of medication costs. While I don't think it is the most responsible thing to do he has lived with it unmedicated for about 6 years now at least. He medicated it for about a year and then we split and he chose to no longer take care of it. No experience with nodules on the thyroid but I had a friend who recently had a mass on her thyroid removed and it was a super easy and quick surgery.

ElleCole+triplets 5 kids; 3 angel babies; Rio Rancho, NM, United States 33257 posts
May 19th

Same exact symptoms here. Diagnosed with hashimotos. Waited months to be seen for my lump. Had it biopsied, malignant. Was about to do a thyroidectomy and got pregnant so now we're on hold. But to answer your question, yeah, it seems no one has any rush to care about a thyroid and it was frustrating as hell. 

Team❤Pink 3 kids; 4 angel babies; Maryland 4672 posts
May 20th

Quoting ElleCole+triplets:
Same exact symptoms here. Diagnosed with hashimotos. Waited months to be seen for my lump. Had it biopsied, malignant. Was about to do a thyroidectomy and got pregnant so now we're on hold. But to answer your question, yeah, it seems no one has any rush to care about a thyroid and it was frustrating as hell. 


Oh wow!
Have you always had thyroid problems/disease? I've never had any issues but I did read and my ENT did say that sometimes pregnancy/postpartum  can cause a type of thyroiditis. They think that's whats going on with me but can't be sure till further testing. 
My neck where my lump is hurts so bad, it radiates up to my jaw and ears. I've been in pain for months now-didnt realize it was serious till just a few weeks ago though, I just thought I was laying weord while nursing at night causing neck strain.

Anyway, thanks!

Team❤Pink 3 kids; 4 angel babies; Maryland 4672 posts
May 20th

Quoting ♥Jessie♥:
My ex-husband has hyperthroidism/Graves' disease. He does not treat it because of medication costs. While I don't think it is the most responsible thing to do he has lived with it unmedicated for about 6 years now at least. He medicated it for about a year and then we split and he chose to no longer take care of it. No experience with nodules on the thyroid but I had a friend who recently had a mass on her thyroid removed and it was a super easy and quick surgery.


Thanks!

ElleCole+triplets 5 kids; 3 angel babies; Rio Rancho, NM, United States 33257 posts
May 20th

Quoting Team❤Pink:

Oh wow!
Have you always had thyroid problems/disease? I've never had any issues but I did read and my ENT did say that sometimes pregnancy/postpartum  can cause a type of thyroiditis. They think that's whats going on with me but can't be sure till further testing. 
My neck where my lump is hurts so bad, it radiates up to my jaw and ears. I've been in pain for months now-didnt realize it was serious till just a few weeks ago though, I just thought I was laying weord while nursing at night causing neck strain.

Anyway, thanks!


Yeah but when i did IVF for my surrogacy is fucked it up even more