My son has to to do genetic testing because he tested positive for Fabry Disease.... we're going up today to get his testing done, and I was wondering if anyone out there has Fabry that would be able to explain how life is with it. I am so worried for my little man..
I have never heard of that but good luck!
Quoting :*:CHRiSTiNe:*::" I have never heard of that but good luck!"
I never either, first time hearing about it was yesterday... I was like what?! I hear it's painful or can be without treatment.