Quoting HopingforaMiracle:" <blockquote><b>Quoting Dr. Temperance Brennan:</b>" They aren't unless it's obvious. People suck."</blockquote> Exactly!"
My disorder isn't well known. They don't know if it's auto-immune or not but after my experience, I'm beginning to think it might be. And I'm an anomoly since it usually attacks middle aged and older men.
<blockquote><b>Quoting Twin's Mommy:</b>" I wouldn't say it's an illness, but if I'm in a vehicle, I get extreme anxiety. It's only gotten worse ... [snip!] ... worse sense the boys were born. Everyone I know makes fun of me for it, 'cause I'm always freaking out when I ride with them."</blockquote>
I have the same problem. I'm always so scared of it. DH used to pick on me because if a transfer truck gets behind or beside me I freak. I close my eyes and have to struggle to breathe right. The last 3 years its been the same way on dark roads. Like if there's no street lights. There's one road he takes all the time that takes us 20 mins to drive. I will sit there the whole time almost crying. But both of mine are from personal experience that has caused my fears.
Quoting Monkey Nuts:" I think phobia's and anxiety are real.. medically diagnosed conditions. It's not something that should ever be made light of IMO. "
Psh, I wish you could convince my mom of that. She thinks I can just miracously overcome my OCD and anxiety because its "all in my head". :roll: Yeah because I just love the feeling that anxiety gives me and I have nothing better to do than obsess over things that the average person would not even give a second thought...
Quoting Soon 2B Mom of 2:" I have HSV1 genitally also. I dont know who told you outbreaks arent painfull, but they are stupid lol. Are you on preventitives?"
Stupidly I listened to the internet, and my ex boyfriend..
For a lot of people though they get ONE outbreak and then that's it for years..
I'm on a support forum and a lot of people are like that.
Yes i'm on supressives but I've been bad at taking them lately.
I took a long trip in a hot car, and I guess it was just a bad environment for my ass to be in for 10 hours.. then a day later.. worst outbreak in a good 6 months.
Quoting Monkey Nuts:" That's horrible.. is there anything they can do for you? "
Oh yeah, it can heal, that's why I said I kind of understand because it's not something I'm gonna live with for the rest of my life. Unless they're wrong and it's not an ulcer. I'm in the diagnosing stage right now, I have to wait 2 weeks for my labs to come back before we know anything.
<blockquote><b>Quoting Dr. Temperance Brennan:</b>" My disorder isn't well known. They don't know if it's auto-immune or not but after my experience, I'm ... [snip!] ... my experience, I'm beginning to think it might be. And I'm an anomoly since it usually attacks middle aged and older men. "</blockquote>
I'm sorry :( a couple of mine aren't well known. People think I'm making them up for attention
Quoting Monkey Nuts:" Stupidly I listened to the internet, and my ex boyfriend.. For a lot of people though they get ONE ... [snip!] ... it was just a bad environment for my ass to be in for 10 hours.. then a day later.. worst outbreak in a good 6 months. "
I have only had it genitally for about 2 years. Sadly I kinda gave it to myself, so I know exactly when I got it. Anyways, I have had 4 outbreaks in that time, and they suck! I quit taking the pills when I got pregnant because I dont trust pills, and so far no breakouts... Hopefully it stays that way.
Quoting HopingforaMiracle:" <blockquote><b>Quoting Dr. Temperance Brennan:</b>" My disorder isn't well known. ... [snip!] ... men. "</blockquote> I'm sorry :( a couple of mine aren't well known. People think I'm making them up for attention"
Mine is an upper GI issue. I think it's auto-immune because it surfaced when I was pregnant and an "attack" was how I found out I was pregnant. I'm over 2 years post partum now and there's no sign it was ever there. And I just had an EGD for food impaction in November and it was really, really bad. :? I think it went into remission. I'm sure it'll crop up again if I ever have a major shift in hormones.
<blockquote><b>Quoting Monkey Nuts:</b>" I just wish people could be more compassionate. "</blockquote>
I have had a friend who's outbreak was so bad she had to be hospitalized for pain control. I can't imagine. But it hurt me seeing her that much pain. I have mental and physical conditions that people don't understand. I was thinking earlier about how my family judged me and alienated me when I needed them the most. I don't see how family could do that.
I have stage 4 endometriosis, and severe eczema, and have suffered depression and anxiety.
The endometriosis used to cause me excruciating pain 24/7...it was definitely comparable to labour. I've had it for so long now, that I am actually used to the pain, and it doesn't bother me as much or as often as it used to. I still have some days where it hurts so bad that I can barely get out of bed, but I deal with it. It helps that I have a high threshold for pain.
The eczema can strike anywhere at anytime on my body. It causes me to erupt in a very red, scaly, itchy and painful rash and it is worse when I am pregnant. To add to the eczema, I am allergic to a lot of stuff, and if my skin comes into contact with certain things, like soaps, laundry detergents, cleaning products, various metals(nickel being the worst) will cause me to break out in horrible rash.
My family and friends would always tell me to "suck it up and forget about it" and that it's "not that bad", or that I'm "exaggerating" how much pain that I am in. They are not understanding or compassionate about it at all. The only person who was supportive and understanding about it was my husband. The sad thing....my mom, my grandmother, my aunt, and my mil all had endometriosis...there's wasn't nearly as severe as mine and it didn't cause them much pain, so they assumed that I was lying about the severity of my condition and the amount of pain that it was causing me. I am sure the fact that I hid the fact that I was in pain well, is part of the reason that they didn't believe me.
Thankfully, my family was supportive and understanding of my depression and anxiety, as most of them have suffered from it as well.
<blockquote><b>Quoting Dr. Temperance Brennan:</b>" Mine is an upper GI issue. I think it's auto-immune because it surfaced when I was pregnant and an "attack" ... [snip!] ... really, really bad. :? I think it went into remission. I'm sure it'll crop up again if I ever have a major shift in hormones."</blockquote>
:? I'm so sorry